More info

Susan mentioned this link about Chiari malformations in her reply and it so happens to be one I was going to add today! It has a pictorial at the bottom which is very helpful. The biggest issue we have to weigh is whether or not we like the idea of them cutting open the dura. The doctor we are seeing on March 21st works at Columbia and it sounds like they don't like to open the dura because it can cause complications. But, the syrinx is so big they might need to relieve the pressure. I'd really rather be in Philly because it'd be easier to get to and my mom would be closer but we'll go where we feel Simon will get the best possible care.

Seth has thrown himself full swing into toodlerhood, temper tantrums and all. I really think it is a little early for this so I am going to have to figure out a good way to handle them. It isn't as if he'd understand a time out.

Hannah told me yesterday how unfair it is that Simon is getting all this attention and she has to go to school. Mind you I told Hannah she could come with us yesterday but she didn't want to go because we'd be in the car for so long. I don't think she'll be so envious when he gets done with the surgery.