Wednesday, March 07, 2007

More info

Susan mentioned this link about Chiari malformations in her reply and it so happens to be one I was going to add today! It has a pictorial at the bottom which is very helpful. The biggest issue we have to weigh is whether or not we like the idea of them cutting open the dura. The doctor we are seeing on March 21st works at Columbia and it sounds like they don't like to open the dura because it can cause complications. But, the syrinx is so big they might need to relieve the pressure. I'd really rather be in Philly because it'd be easier to get to and my mom would be closer but we'll go where we feel Simon will get the best possible care.

Seth has thrown himself full swing into toodlerhood, temper tantrums and all. I really think it is a little early for this so I am going to have to figure out a good way to handle them. It isn't as if he'd understand a time out.

Hannah told me yesterday how unfair it is that Simon is getting all this attention and she has to go to school. Mind you I told Hannah she could come with us yesterday but she didn't want to go because we'd be in the car for so long. I don't think she'll be so envious when he gets done with the surgery.

3 comments:

Amy York said...

Wow Ellen... I'm just amazed that Simon is going through this... HOw are you holding up? When will the surgery be? I think I'd opt for Philly too... Moms can really come in handy for these types of things. It's so hard to watch your baby going into surgery. Ugh. Hang in there - your family is in my thoughts!

Ria said...

Wow! Look at everything that happens while I am away from your blog for a few days. So here is my attempt to catch up:
HAPPY BIRTHDAY!! Was it better than last year...post baby?
I absolutely love Hannah's haircut. She looks so old. I also love the quilt. Those are absolutely beautiful colors for a baby.
I also wanted to let you know you are very much in my thoughts with the Simon stuff. That has got to be so scary. I am so sorry!

yvonne said...

Prayers and good thoughts coming your way, Ellen. Give Hannah, Simon, and Seth big hugs from "Marlena's Grandma."
Love to you & Dan
Yvonne