showed something not so good. He has fluid build up in his spine, a condition called syrinx. His MRI was early this morning. We had to be there at 7:15 am. Not long after they started it one of the doctors that over sees the procedures came out and asked me if it would be ok to do the MRI with contrast because he saw what looked like the cerebellum as it comes down into the spinal cavity is to big and it causes the fluid to not flow as well in the spine. This might be the direct cause of the scoliosis but that has been put on the back burner for now. Simon was sedated for almost 2 hours. Poor kid. He had a really hard time waking up.
Simon's orthopedic doctor called me about an hour ago and told us we need to go see a pediatric neurosurgeon to talk about what our treatment options are. We have to go all the way to Children's Hospital in Philadelphia. The appointment is in 2 weeks. I really don't fully understand what all this means quite yet. I am sure once I understand this more things will make more sense to me and it will be a little easier to process.
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4 comments:
Oh my goodness, Ellen, how scary! I really hope everything is Ok. Please keep us updated!
Hang in there - I'm sure he'll be fine!
As you know, my prayers are with you and Simon, Hannah, Seth and Daniel.
whatever you need, I am here
Thanks everyone. Just knowing you are all there for us helps. Of course I'll keep giving updates.
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